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Stroke Action Rwanda community event
SAR awareness campaign
🧠 Since 2015
Rwanda
Our Organization

Rwanda's Dedicated Stroke Action Organization

Stroke Action Rwanda is the country's leading organization dedicated exclusively to stroke prevention, awareness, acute care advocacy, rehabilitation, and long-term support. Founded to address the growing burden of stroke as a leading cause of death and disability in Rwanda, we work across the entire stroke continuum of care.

Our multi-disciplinary team of health professionals, advocates, researchers and community workers brings together expertise in neurology, physiotherapy, nursing, public health, policy, and communications to deliver measurable impact across Rwanda.

  • Registered NGO Registered with Rwanda Governance Board (RGB) with full legal personality certificate.
  • Evidence-Based Programs All programs aligned with WHO stroke guidelines, clinical evidence, and Rwanda's national NCD strategy.
  • Community-First Approach Survivors, caregivers, and communities are co-creators of our programs — not just beneficiaries.
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Our Foundation

Mission, Vision & Purpose

🎯 Our Mission

To reduce the incidence, recurrence, and long-term disability associated with stroke in Rwanda through integrated prevention, advocacy for equitable access to acute stroke treatment, structured rehabilitation, caregiver support, and health system strengthening.

🌟 Our Vision

A Rwanda free of severe stroke, where stroke prevention is prioritized within national NCD strategies, where acute stroke care is accessible, where multidisciplinary rehabilitation services are available across the continuum of care, and where every person affected by a stroke receives comprehensive long-term support.

Our Programs

What We Do

Our work spans the full stroke care continuum — from community prevention to long-term rehabilitation — delivered through evidence-based programs across Rwanda.

🛡️

Stroke Prevention

Promote primary and secondary stroke prevention through risk factor screening, public education, and health literacy initiatives targeting high-risk populations across Rwanda.

📣

Community Awareness

Conduct community-based awareness campaigns on early recognition of stroke symptoms using the F.A.S.T. method and emergency response activation — saving lives through fast action.

💪

Survivor Rehabilitation

Support stroke survivors through rehabilitation guidance, psychosocial support, and community reintegration initiatives promoting independence and quality of life.

❤️

Caregiver Support

Provide structured education and support for caregivers involved in long-term stroke management — equipping families with the knowledge and resources they need.

🏛️

Policy Advocacy

Advocate for organized stroke care systems, improved access to neuroimaging and acute treatment pathways, and collaboration with health professionals and institutions across Rwanda.

🔬

Research & Evidence

Support clinical research, outcome monitoring, and knowledge translation to improve stroke care quality, inform policy, and contribute to regional and global stroke science.

Our Principles

Our Core Values

🔬Evidence-Based
🤝People-Centered
⚖️Equity-Driven
💬Co-Creation
🌱Sustainability
🔍Accountability

Evidence-Based Intervention

We are committed to delivering and advocating for interventions grounded in the best available scientific evidence. All programs and services are aligned with validated clinical guidelines, recognized public health frameworks, and context-appropriate best practices across the stroke continuum of care — prevention, acute care, rehabilitation, and long-term support. Decision-making integrates rigorous scientific evidence, clinical expertise, and the lived experience of stroke survivors and caregivers. We systematically review emerging evidence, monitor performance indicators, and adapt implementation to ensure effectiveness, quality, safety, and measurable impact.

People-Centered and Equity-Driven Care

We place individuals, families, and communities at the center of all policies, programs, and services. Our approach prioritizes dignity, autonomy, cultural responsiveness, and continuity of care across the stroke pathway. We actively address disparities in access and outcomes by promoting equitable access to prevention, emergency response, treatment, rehabilitation, and long-term support — particularly for underserved, rural, low-income, and vulnerable populations. Equity is embedded in program design, resource allocation, partnerships, and performance measurement.

Meaningful Engagement and Co-Creation

We institutionalize the meaningful engagement of individuals with lived experience of stroke throughout the full program cycle. Survivors, caregivers, and community representatives contribute to priority setting, program design, implementation planning, monitoring and evaluation, and policy advocacy. Engagement mechanisms are structured, inclusive, and sustained to ensure participation is substantive and influential. Programs are co-created and adapted to local context to maximize relevance, acceptability, equity, and effectiveness.

Community Capacity and System Strengthening

We strengthen community and health system capacity through education, awareness, workforce development, and multi-sectoral collaboration. Our initiatives promote sustainable improvements in stroke literacy, early recognition and referral, rehabilitation access, and long-term support systems. Progress is tracked through defined indicators aligned with national health priorities and our strategic objectives.

Accountability, Transparency, and Ethical Stewardship

We operate with robust governance structures, clearly defined roles and responsibilities, measurable objectives, and transparent reporting systems. We ensure responsible stewardship of financial, human, and institutional resources; compliance with legal and ethical standards; and continuous performance monitoring against strategic targets. Accountability extends to beneficiaries, partners, donors, regulators, and the public, reinforcing trust, integrity, and organizational credibility.

Our Journey

How SAR Grew

From founding vision to Rwanda's leading stroke organization — a decade of growing impact.

2015
Founded

Stroke Action Rwanda Established

SAR is founded by Dr. Joseph Rukelibuga and registered with Rwanda Governance Board (RGB). The founding mission: reduce the burden of stroke in Rwanda through evidence-based advocacy and community action.

2017
Programs

First Community Awareness Campaigns

Launch of Rwanda's first organized stroke F.A.S.T. awareness campaigns, reaching thousands across Kigali and surrounding districts with life-saving symptom recognition education.

2019
Partnerships

International Partnerships Formed

SAR joins the World Stroke Organization (WSO), African Stroke Organization (ASO), and East Africa NCD Alliance — bringing Rwanda's stroke agenda to the global stage and accessing international resources.

2021
Resilience

Adapting Through COVID-19

Despite pandemic disruption, SAR expanded digital health education, supported stroke survivors remotely, and strengthened caregiver programs — demonstrating organizational resilience and adaptability.

2023
Growth

National Rehabilitation Initiative

Launch of structured caregiver education programs and survivor rehabilitation support networks across Rwanda's provinces, reaching over 1,000 individuals with post-stroke care guidance.

2025
Today

Leading Rwanda's Stroke Response

SAR today operates 5 core programs, partners with 30+ organizations nationally and internationally, and advocates at the highest levels of Rwanda's health policy for organized stroke care and NCD integration.

Board of Directors

Dr. Joseph Rukelibuga — Founder and President

Dr. Joseph Rukelibuga

Founder and President

Ms. Alexia Uwajeneza — Vice President

Ms. Alexia Uwajeneza

Vice President

PT. Jean Paul Hakizimana — Executive Secretary

PT. Jean Paul Hakizimana

Executive Secretary

Mr. Silas Mutsindashyaka — Audit Committee

Mr. Silas Mutsindashyaka

Chairperson, Audit Committee

Mr. Robert Twongyeirwe — Conflict Resolution

Mr. Robert Twongyeirwe

Chairperson, Conflict Resolution Committee

Volunteer Leadership & Management Team

Mr. Charles Karangwa — Executive Director

Mr. Charles Karangwa

Executive Director

Mr. Sylvere Mudendeli — Director of Programs

Mr. Sylvere Mudendeli

Director of Programs

Mr. Ghislain Mutabaruka — Communications Officer

Mr. Ghislain Mutabaruka

Communications Officer

Ms. Epiphanie Akimanizanye — Accountant

Ms. Epiphanie Akimanizanye

Accountant

Want to join our volunteer team? We welcome passionate health professionals and advocates.

Join Our Team
Collaborations

Our Partners & Networks

We work with Rwanda's leading health institutions and international stroke organizations to maximize our reach and impact.

Together We Can End Preventable Stroke in Rwanda

Up to 80% of strokes are preventable. With your support — whether through donation, volunteering, or spreading awareness — we can reach every community in Rwanda with life-saving stroke knowledge.

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